https://www.youtube.com/watch?v=nFT3Dyc9a_g

https://www.youtube.com/watch?v=iuYxGtuBSgk

https://www.youtube.com/watch?v=GCax67biGmU

https://www.youtube.com/watch?v=yJqe40_x-TA

Jonathan Pitre passed away in April 5, 2018 and he was just 17 years old! Jonathan wasn't an ordinary boy. He was a survivor of Epidermolysis Bullosa. Jonathan Pitre, his dreams and struggles actually made me write this story...

https://www.youtube.com/watch?v=bSmq3tW_s7Y

And here's Dean, another fighter! He's 47 and he knows how to turn negativity to positivity!

The Debra organization in the US and the Detibabochki in Russia, who work continuously for the children inspired me too... These real life encounters are this here for you too see. Thanks!

Hope you're enjoying BUTTERFLY WINGS... See you soon! And remember, our Phoebe is suffering from a milder form, though deadly! So keep your hopes for her... Hope she matters to you!

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